By Chris Nakea
In a follow-up to our previous article, Karrie Hughes-Kay continues to share the evolving story of her mother, Jutta Glavind, and their journey with the Alzheimer’s treatment, Leqembi. This detailed account not only offers insight into the complexities of starting and maintaining treatment but also highlights the remarkable progress Jutta has made since beginning Leqembi infusions.
Embarking on the Leqembi Journey
The process of starting Leqembi treatment is rigorous, involving multiple steps and tests. Karrie explains that it begins with a cognitive test to determine eligibility, followed by a lumbar puncture and MRI to confirm the presence of amyloid proteins. Once these criteria are met, extensive paperwork and coordination with the drug company, Eisai, and insurance providers are necessary.
Karrie’s experience underscores the importance of persistence. After initial delays, she took proactive measures, constantly communicating with Eisai and her mother’s doctors to expedite the approval process. This dedication ensured Jutta could begin treatment as soon as possible.
Preparing for Infusions
In the weeks leading up to Jutta’s first infusion, Karrie meticulously monitored her mother’s blood pressure and weight, crucial for determining the correct dosage. She also secured medications to manage potential side effects, including anti-anxiety and anti-nausea drugs. This preparation paid off, as Jutta’s first infusion proceeded smoothly despite initial anxiety and post-infusion nausea.
Witnessing Remarkable Progress
The impact of Leqembi on Jutta’s condition has been profound. Despite some initial side effects, Jutta showed significant improvement in her demeanor and engagement with her surroundings. Karrie recounts how Jutta’s personality, previously dulled by the disease, began to shine through again. Simple tasks like helping around the house, engaging in conversations, and remembering personal details brought immense joy to the family.
Continued Monitoring and Adjustments
As Jutta continued with her infusions, Karrie maintained a rigorous schedule of monitoring and adjustments. Blood pressure fluctuations and occasional wooziness were managed with the help of her doctors and regular updates to her treatment plan. The second and third infusions followed a similar protocol, with each session bringing incremental improvements in Jutta’s cognitive function and overall well-being.
A Newfound Hope
The transformative effect of Leqembi on Jutta’s condition has been a source of hope and inspiration for Karrie and her family. Not only has Jutta’s personality returned, but she has also become more independent, participating in family activities and even assisting with household chores. This progress has been particularly evident during significant events, such as their attendance at a Rotary Convention, where Jutta’s engagement and sociability marked a stark contrast to her previous state.
The Importance of Advocacy and Support
Karrie’s story highlights the critical role of advocacy and support in managing Alzheimer’s. Her proactive approach in navigating the complexities of treatment approval and her unwavering dedication to her mother’s care have been instrumental in achieving these positive outcomes. Karrie’s detailed account serves as a guide for other families facing similar challenges, emphasizing the importance of persistence, preparation, and the willingness to seek out and utilize available resources.
Looking Forward
The journey with Leqembi is ongoing, with Karrie already planning additional therapies, such as ultrasound treatments, to further support her mother’s progress. Each infusion brings new hope, and the family remains optimistic about the future. Karrie’s meticulous documentation of her mother’s treatment and progress offers invaluable insights for other caregivers and underscores the potential of innovative treatments like Leqembi in transforming the lives of those affected by Alzheimer’s.
Conclusion
Karrie’s journey with her mother’s Alzheimer’s treatment using Leqembi is a testament to the power of love, dedication, and the relentless pursuit of better outcomes. As more families navigate the complexities of Alzheimer’s care, stories like Karrie’s provide both guidance and hope, illustrating the profound impact that new treatments and unwavering advocacy can have on the lives of those affected by this challenging disease.
For more information on Alzheimer’s treatments and support resources, visit our website and parter websites.
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